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Help End the Diagnostic Odyssey
Every child deserves the chance to be understood, diagnosed, and cared for — no matter where they are born.
Odessia is a nonprofit organization working to expand access to clinical whole genome sequencing for children with suspected rare genetic diseases, especially in regions where this testing is unavailable, unaffordable, or difficult to navigate.
For many families, the path to a diagnosis can take years. They may see multiple specialists, undergo repeated tests, and still be left without answers. Whole genome sequencing can help shorten that journey by giving physicians and families a clearer understanding of what may be causing a child’s symptoms.
But access remains deeply unequal.
Your donation helps Odessia support families, physicians, and local clinical partners by reducing financial, logistical, and geographic barriers to genomic testing.
Odessia uses donations to support patient access, clinical coordination, genetic counseling support, logistics, education, and program operations needed to responsibly expand access to genomic testing. Donations are used in service of Odessia’s charitable mission and patient benefit.
Because Odessia’s federal 501(c)(3) application is pending, tax-deductibility may depend on IRS approval and the timing of the gift. Donors should consult their tax advisor regarding deductibility.
6
families served10
active members $5100
raised since founding