For Families Searching for Answers

If your child has an unexplained medical condition, Odessia Health may be able to help your physician explore whether whole genome sequencing is the right next step.

We support families by working through the doctor caring for your child. Odessia helps coordinate access to clinical genomic testing, family-friendly education, genetic counseling support, and clear information about costs and possible financial support.

Odessia Health does not replace your child’s doctor or provide a diagnosis directly. Instead, we help make the testing process easier to understand and easier to access.

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  • Genome sequencing is a medical test that looks closely at a person’s DNA.

    DNA is like the body’s instruction book. Sometimes, a small change in DNA can affect a child’s health, growth, learning, or development.

    Genome sequencing may help doctors find the reason a child is sick or developing differently. It may also help guide care, treatment, follow-up, or which specialists may be helpful.

    The test usually uses a small blood or saliva sample. Sometimes, biological parents are asked to give samples too. This is called trio testing. Parent samples can help the lab understand the child’s results better.

    This does not mean either parent did anything wrong.

  • Odessia helps families and doctors access genome sequencing.

    We help with the steps before, during, and after testing. This may include reviewing the case, talking with the child’s doctor, helping with consent, coordinating with a trusted lab, helping with sample and kit steps, and making sure results go back to the doctor.

    Odessia does not replace your child’s doctor. Your child’s doctor stays in charge of your child’s care.

  • You can reach out if you or your child may have a rare genetic condition and your family is still looking for answers.

    This may be helpful if:

    • There is no clear diagnosis

    • You or your child have seen several doctors

    • Your child is growing, learning, or developing differently

    • Symptoms may be genetic

    • Your doctor thinks genome sequencing may help

    • Your family needs help understanding possible next steps

  • Yes! We do.

    Odessia is focused on helping children and families, but we can also review adult cases when a rare genetic condition may be possible.

    If you are an adult who has been looking for answers, or if your doctor thinks genome sequencing may help, you can reach out to Odessia.

  • First, we learn more about the case.

    Then, our team reviews the information to see if genome sequencing may be a good fit. We may also talk with the treating doctor.

    If testing may help, we will schedule a phone or video call. On that call, we will explain the test, the steps, the possible cost, and any support that may be available.

    Nothing moves forward unless you understand the plan and agree.

  • Sometimes genome sequencing does not find an answer right away.

    This does not mean the test failed. Genetics is changing quickly. In the future, results may be reviewed again as doctors and scientists learn more.

    This is sometimes called reanalysis.

  • We know cost can feel scary.

    Odessia does not want families to walk away just because they are afraid of the price. That is why we talk about cost live by phone or video call.

    After we explain the possible cost, we will work with your family to look for the best option. This may include lower-cost options, donor support, grant support, or other help when available.

    If genome sequencing is right for you or your child, our goal is to help make cost less of a barrier.

  • Your information will be handled with care.

    We only share information with permission and only with people or groups helping with the case. If information may be used for learning, research, or program improvement, you will be asked first.

    When possible, names and details that identify you or your family are removed.

  • No. Odessia is not an emergency medical service.

    Odessia does not provide urgent medical care, emergency advice, diagnosis, or treatment. If you or your child has urgent or life-threatening symptoms, please contact your treating doctor, go to a hospital, or use local emergency services.

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