Bringing genomic answers within reach.
Odessia Health is a nonprofit helping children with suspected rare genetic diseases access clinical whole genome sequencing - regardless of geography. We work with families, local physicians, genetic counselors, laboratories, and partners to reduce the financial, logistical, and system barriers that keep children from getting answers.
Millions of families are still searching for answers.
More than 300 million people around the world live with a rare disease. Thousands of rare diseases have been identified, most are genetic, and many begin in childhood. For children and families, the path to an answer can be long, expensive, and emotionally exhausting.
300M+
people living with a rare disease worldwide
6,000+
rare diseases identified
~72%
of rare diseases are genetic
5+ Years
often cited in rare disease diagnosis delays, with many families waiting longer
What is the diagnostic odyssey?The diagnostic odyssey is the long search for the reason behind a child's symptoms. It may include years of specialist visits, inconclusive tests, repeated hospitalizations, uncertainty, and emotional strain - all while families continue searching for an answer.
Odessia exists to help shorten that journey.
Why genome sequencing?Genome sequencing looks across a person's DNA more broadly than many traditional genetic tests. For children with complex, unexplained symptoms, it can help physicians identify or rule out genetic causes, guide next steps, and reduce the need for repeated, fragmented testing.